Alzheimer’s Disease Caregiver Support Initiative
The Center for Neurobehavioral Health is proud to be one of nine state recipients awarded funding from the Alzheimer’s Disease Caregiver Support Initiative.
The primary goal of this initiative is to make available expanded support to caregivers of individuals with Alzheimer’s disease and other dementias (AD/D). These “caregiver support services” are activities or actions performed, provided or arranged to promote, improve, conserve or restore the mental or physical well-being of caregivers and improve their quality of life.
To help expand caregiver support services in Clinton, Essex, Franklin, Hamilton, Warren, and Washington Counties, our staff work with partner agencies to provide the services and programs described below. These services are conveniently provided in the caregiver’s home, at a community-based location, or remotely.
For more information about services and programs, please contact us at the number listed at the bottom of this page.
Caregiver Support Services
Care consultation is a service provided by trained professionals to the caregiver and family members that incorporates personalized assessment, service plan development, trouble-shooting and periodic updates. Care consultation considers and incorporates patient and caregiver needs, resource management, continuity in care, and linkages to community services. Care consultation also includes education and support tailored to the individual caregiver and/or family members. These services are offered in the six-county area via an in-person meeting, or in cases where an in-person meeting is not possible, care consultation will be offered via telephone.
Family consultation is a service provided by trained professionals that offers an opportunity to bring caregivers and family members together to discuss issues of common concern, strategies to address them, and the opportunity to learn together in a safe facilitated forum. Family consultation is available to identified caregivers and family members as identified by the caregiver or person with AD/D in the entire six-county area via an in-person meeting, and if this is not an option, family consultation will be offered via phone.
Caregiver Support Groups
Caregiver support groups are designed to provide emotional support, information, resources, and a platform for caregivers to share strategies and lessons learned with other caregivers of persons with AD/D. Support groups are designed to meet the specific needs of the communities to be served in the six-county area, including cultural and language issues, and the time of day the groups are offered. A variety of in-person and virtual support groups are available throughout the six-county area to create opportunities for caregivers, family members, and their loved ones with AD/D.
Training and Education Programs
Training and education programs provide necessary knowledge and information to enable the caregiver to navigate through the progression of AD/D. These programs deliver education and training on a range of subjects to better prepare the caregiver for his/her caregiving role. Examples of topics include AD/D and its progression, behavior management strategies and interventions, coping skills, resource availability, and caregiver wellness. A variety of in-person and/or virtual education and training programs are available throughout the six-county area to create opportunities for caregivers.
Respite is intended to deliver relief to caregivers who provide care and support to individuals with AD/D by offering a temporary reprieve from the stresses associated with caregiving. Respite is intended to strengthen the family system while protecting the health and well-being of both the caregiver and the care recipient. Respite services afford caregivers an interval of relief by providing time for them to engage in necessary and important functions including social activities, attending appointments, worship services, family commitments, and attention to other personal needs. Respite services include opportunities for the care recipient to engage in appropriate social and stimulating activities. Respite services are provided by trained professionals who may be volunteers or paid individuals. The services are person centered to reflect both the cultural needs and level of care of the caregiver and person with AD/D. In addition, the primary location for the service is in a location that reduces the potential for harmful transitions, including, but not limited to, the care recipient’s home, adult day program, or other residential facility.
Technology-Based Services/Project Lifesaver
Technology-based services are intended to promote contact and communication to reduce caregiver isolation, inform caregivers of events and support services, match home health aides with caregivers needing caregiving services, and to offer other specified benefits to caregivers. One benefit offered to those at risk for elopement and wandering will be Project Lifesaver. Project Lifesaver uses radio frequency technology to track adults with AD/D and others at risk for elopement and wandering.